Georgia finished a round of chemo and steroids a few weeks ago. I was SO happy to have that over with. She gets "steroid psychosis". Which means she becomes a psycho. This round of steroids seemed less daunting because it was only a week on, a week off, and then another week on. The problem was it was a very high dose. Towards the end of the last week she would scream for hours on end. I would have to leave the house and walk down the sidewalk until I couldnt hear her. I was honestly afraid a neighbor would call the police. She would scream over anything. Mostly over me not having the right food in the house. And the screaming wouldnt end if I got the right food. Steroids make people crave salty, processed foods. CONSTANTLY! Anyway, she was prescribed Zanax and it helped. And then after a week the steroids left her system and Georgia was back! It was awesome. Soon after she finished the steroids she had a 5 day hospital stay for a fever. Her immunity was at a 0. Normal immunity (or ANC ) is around 5,000, I think. Her ANC ended up rising much faster than expected and she was able to start her next round of chemo. It started with another lumbar puncture and methotrexate into her spine and brain, some other chemo drug in an IV for about 6 hours, and we were sent home with chemo in the form of shots to give her a few nights for 2 weeks and chemo in pill form to be given every night for 2 weeks. The shots were traumatic. Luckily Drew gives shots all day so I was able to pass that job onto him. We are all so happy that is over with. And now with this round of chemo coming to an end, Georgia's immune system is once again knocked out and we are sentenced to isolation at home! Trying to keep her away from other people and places. We are expecting to have to bring her to the hospital at some point within the next few weeks as any germ at all will give her a fever since she doesnt have an immune system to fight it. As every round or phase of chemo ends we feel so relieved. We can see the end coming and see the progress we are making with her treatments. As far as I know we have about 2 months left of the icky stuff. That is just a wonderful feeling. We have also been so blessed to have so many wonderful, thoughtful, kind, giving people around us and far away that are constantly doing things to brighten our Georgia's day. And when Georgia is happy the rest of us are happy! It truly means so much to me and my family.
Wednesday, October 16, 2013
I have figured out why it is so hard for me to write a post on the blog. I used to keep a blog a few years back and really enjoyed recording the events that were taking place in our family. Ive decided this is so much different than that situation because unlike writing about an "event", the task of recording an event that is 24 hours a day for the last 6 months, is much more daunting. How easy and enjoyable it is to write about a trip to Disneyland, or a child's first words, or maybe even a week of the whole family puking their guts out. It is over and done with and your brain can easily break down the event into comprehensible thoughts. I feel as though my brain is mush. There have been several times since last I wrote that I wanted to sit and write about what treatment we just finished, but then a new treatment begins shortly after with very rough days during and in between. And then I get the courage to try to write and I cant even remember what happened 3 days ago. Lets see if I can remember a few big events.
Georgia finished a round of chemo and steroids a few weeks ago. I was SO happy to have that over with. She gets "steroid psychosis". Which means she becomes a psycho. This round of steroids seemed less daunting because it was only a week on, a week off, and then another week on. The problem was it was a very high dose. Towards the end of the last week she would scream for hours on end. I would have to leave the house and walk down the sidewalk until I couldnt hear her. I was honestly afraid a neighbor would call the police. She would scream over anything. Mostly over me not having the right food in the house. And the screaming wouldnt end if I got the right food. Steroids make people crave salty, processed foods. CONSTANTLY! Anyway, she was prescribed Zanax and it helped. And then after a week the steroids left her system and Georgia was back! It was awesome. Soon after she finished the steroids she had a 5 day hospital stay for a fever. Her immunity was at a 0. Normal immunity (or ANC ) is around 5,000, I think. Her ANC ended up rising much faster than expected and she was able to start her next round of chemo. It started with another lumbar puncture and methotrexate into her spine and brain, some other chemo drug in an IV for about 6 hours, and we were sent home with chemo in the form of shots to give her a few nights for 2 weeks and chemo in pill form to be given every night for 2 weeks. The shots were traumatic. Luckily Drew gives shots all day so I was able to pass that job onto him. We are all so happy that is over with. And now with this round of chemo coming to an end, Georgia's immune system is once again knocked out and we are sentenced to isolation at home! Trying to keep her away from other people and places. We are expecting to have to bring her to the hospital at some point within the next few weeks as any germ at all will give her a fever since she doesnt have an immune system to fight it. As every round or phase of chemo ends we feel so relieved. We can see the end coming and see the progress we are making with her treatments. As far as I know we have about 2 months left of the icky stuff. That is just a wonderful feeling. We have also been so blessed to have so many wonderful, thoughtful, kind, giving people around us and far away that are constantly doing things to brighten our Georgia's day. And when Georgia is happy the rest of us are happy! It truly means so much to me and my family.
Back in the clinic for a full day of chemo. Her sweet friend Chloe, and her baby sister Georgia came to keep her company!!! It was such a blessing! That long day whizzed by! That baby Georgia has had to be brave and go through so much, just like our Georgia. Such special girls.
Georgia was invited to play with some friends. Kayla Addie and Kylee. Those girls were so sweet to Georgia. They made bracelets and sold them. Then gave all the money to Georgia. So cute.
Ok, these pics are a bit random. As I was looking for recent pics to post I came across a few old ones and had to include them. Because I love them.
Grandma and Grandpa Harrison came all the way from Utah for Cooper's baptism. Cooper was very lucky to have all of his great grandparents and grandparents at his baptism in September.
Georgia finished a round of chemo and steroids a few weeks ago. I was SO happy to have that over with. She gets "steroid psychosis". Which means she becomes a psycho. This round of steroids seemed less daunting because it was only a week on, a week off, and then another week on. The problem was it was a very high dose. Towards the end of the last week she would scream for hours on end. I would have to leave the house and walk down the sidewalk until I couldnt hear her. I was honestly afraid a neighbor would call the police. She would scream over anything. Mostly over me not having the right food in the house. And the screaming wouldnt end if I got the right food. Steroids make people crave salty, processed foods. CONSTANTLY! Anyway, she was prescribed Zanax and it helped. And then after a week the steroids left her system and Georgia was back! It was awesome. Soon after she finished the steroids she had a 5 day hospital stay for a fever. Her immunity was at a 0. Normal immunity (or ANC ) is around 5,000, I think. Her ANC ended up rising much faster than expected and she was able to start her next round of chemo. It started with another lumbar puncture and methotrexate into her spine and brain, some other chemo drug in an IV for about 6 hours, and we were sent home with chemo in the form of shots to give her a few nights for 2 weeks and chemo in pill form to be given every night for 2 weeks. The shots were traumatic. Luckily Drew gives shots all day so I was able to pass that job onto him. We are all so happy that is over with. And now with this round of chemo coming to an end, Georgia's immune system is once again knocked out and we are sentenced to isolation at home! Trying to keep her away from other people and places. We are expecting to have to bring her to the hospital at some point within the next few weeks as any germ at all will give her a fever since she doesnt have an immune system to fight it. As every round or phase of chemo ends we feel so relieved. We can see the end coming and see the progress we are making with her treatments. As far as I know we have about 2 months left of the icky stuff. That is just a wonderful feeling. We have also been so blessed to have so many wonderful, thoughtful, kind, giving people around us and far away that are constantly doing things to brighten our Georgia's day. And when Georgia is happy the rest of us are happy! It truly means so much to me and my family.
Wednesday, October 2, 2013
A few weeks ago Drew and I had the kids sit down next to us on the couch. I pulled out this...
and asked the kids if they knew what it was.
Georgia piped right up, "Its a baby!"
Cooper "what?"
Georgia "Its a baby. There's it's head, there's its legs and those are it's arms."
Cooper "Hu?"
Georgia "It's an ultra sound!"
Georgia starts bouncing up and down on the couch with a huge smile on her face. Cooper is still expressionless.
Cooper "So that's baby Tallulah."
Me "I went to the doctor today and this is what I got while I was there."
Cooper "He gave you a picture of baby Tallulah."
Georgia is bouncing up and down and shaking her head NO.
Me "The doctor took a picture of my tummy today, and this is what he found in it."
He finally got it.
Then later that night as Cooper and I were rollerblading he said out of the blue, "So are you going to have like 10 kids or something?"
Me "NO!"
Cooper "Well how many babies to moms normally have?"
Me, "I dont know, 2?"
Cooper "cause it seems like you have had enough babies. When will you stop?"
Nice. Can we just go back to talking about spiders and beetles please?
and asked the kids if they knew what it was.
Georgia piped right up, "Its a baby!"
Cooper "what?"
Georgia "Its a baby. There's it's head, there's its legs and those are it's arms."
Cooper "Hu?"
Georgia "It's an ultra sound!"
Georgia starts bouncing up and down on the couch with a huge smile on her face. Cooper is still expressionless.
Cooper "So that's baby Tallulah."
Me "I went to the doctor today and this is what I got while I was there."
Cooper "He gave you a picture of baby Tallulah."
Georgia is bouncing up and down and shaking her head NO.
Me "The doctor took a picture of my tummy today, and this is what he found in it."
He finally got it.
Then later that night as Cooper and I were rollerblading he said out of the blue, "So are you going to have like 10 kids or something?"
Me "NO!"
Cooper "Well how many babies to moms normally have?"
Me, "I dont know, 2?"
Cooper "cause it seems like you have had enough babies. When will you stop?"
Nice. Can we just go back to talking about spiders and beetles please?
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